An Autumn Called Evan, by Deborah Klane

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Chapter 15
Contemplating Your Child’s Mortality

How Long

How long do I have
  to hold you on my lap while we read?

How long do I have
  to see your always sweet and sometimes sly smile?

How long do I have
  to hold your soft, warm hand in mine?

How long do I have
  to watch you struggle to learn and communicate?

How long do I have
  to watch you feel frustrated and discouraged?

How long do I have
  to watch you battle the terrible seizures
    that rack your brain and body?

How long do I have
  left to love you just the way you are?

How long do I have
  left before you leave me?