An Autumn Called Evan, by Deborah Klane

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ABOUT THE BOOK -
Reviews

Noreen O’Brien —
Mainely Women Wordsmith 3/2003

Busnell on Books —
Central Maine Newspapers 4/13/03

Georgeanne Davis —
The Free Press 10/16/03

Suzanne Spruce —
EMMC Currents 11/25/03

 

Maine-ly Women Wordsmiths, March 2003 Vol. 2 Issue 6
Reviewed by Noreen O'Brien

While I want to say that An Autumn Called Evan, by Deborah Klane is a heartbreaking story, I cannot. Klane does such a beautiful job of showing us the human side of her severely ill child Evan, the ultimately, what I see is a family consumed in love, inspired and fostered by a beautiful boy.

Klane tells the story of Evan through recollections begun at about the time of Evan's tenth birthdaya miracle birthday if ever there was one. She records their life in and out of hospitals, doctor's offices, life-threatening emergencies, treatments, home healthcare, school, all from the moment of Evan's birth. We
learn what it is like to be the parent of an exceptional child, as much as we learn what life is like for the child.

To help illustrate the life of this family, their experiences, and emotions, Klane
has included poems and drawings she created over the years, which have been sprinkled throughout the book, as well as family photographs. All of these are a touching reminder that this family is real and that the issues they face every day are huge.

Too, this is as much a how-to book as it is the story of one family. There are chapters included on being an effective team player, taking care of yourself as a parent, learning to trust your own instincts, and how to stand up for yourself and your child when you in disagreement with the professionals. A glossary is
included, as well as a medical timeline, which is a bit of a capsulation of the
events Evan experienced during each year of his life to date. All unfathomable to this reader.

Klane recommends that medical professionals be given training on how to deal effectively with parents of exceptional children, and to include ongoing training
in this field. One can only imagine what this family experienced and that was not recorded in this book. The ignorance on the part of some of these "professionals"
is quite astonishing. To me, even once being made to feel as though Evan was something less than human was too many times, yet, Evan and his parents and brother face into this regularly, including from within the world of "healthcare," which is becoming more an oxymoron every day in my own limited experience in that area.

I marvel at the ferocity of protecting her child's rights and humanity Klane brings
to her mission as mother to Evan. While this book is very much a book about Evan, I think it is also a testimony to Evan's parents, and his mother, Deborah Klane, in particular. I was moved to tears on more than one experience shared in these pages, and made to feel angry and frustrated at how poorly we treat those who are different from us, including children.

When all is said and done, however, the most powerful moment in the reading of this book came toward the end. Klane had decided to have Evan speak for himself rather than guess at his answers to her wonderings. Among other question, she asked Evan if he was frustrated with the life he has been given having done
nothing to deserve this lot since he hadn't chosen it. Evan quickly signed no as his response to this question, which stunned his mother. Further questioning convinced Klane that Evan chose this life and, moreover, that God asked him to take this "assignment."

Stunning childstunning family.

Poignant memoir of Evan's struggle,
by Bill Busnell Central Maine Newspapers

As the mother of an exceptional child, Deborah Klane has learned a few hard lessons about life. Her son Evan, suffers from acute cerebral palsy and sever epilepsy, and he requires constant care and attention.

An Autumn Called Evan is Klane's poignant memoir of Evan's life and how his struggle has influenced herself, her husband, and Evan's little brother. Klane and her family live in Fairfield and this is her first book.

This is a first-person story, as Klane candidly tells of the challenges of caring for such an exceptional child. Evan is almost 12 years old now, and Klane relates the full range of emotions and challenges from birth to stunning discovery of his medical problems, and through the years of coping, learning, and cherishing the life of an ailing little boy.

Through all of Evan's bouts with pneumonia, the operation, infections, and eye problems, Klane and her husband have endured incredible stress, uncertainly, and frustration. However, they have also enjoyed the love of a little boy, and
they have gained a much better understanding of human nature, especially their own family relationships.

This would be merely a sad story if not for Klane's upbeat approach, unvarnished honesty, and positive attitude. She turns this into an inspirational story of hope, faith, and appreciation for life itself, even when faced with Evan's uncertain future and a child's mortality. Her chapters on her husband and her youngest son are particularly revealing.

Klane has no illusions about Evan's future. saying, "I think of Evan as a little boy, sage beyond his years; someone who has been given the gift of knowing of what
his purpose, his his job is while on Earth; someone who has met the challenges of his job with grace, strength, and a style all his own."

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