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Noreen
O’Brien —
Mainely Women Wordsmith 3/2003
Busnell
on Books —
Central Maine Newspapers 4/13/03
Georgeanne Davis —
The Free Press 10/16/03
Suzanne Spruce —
EMMC Currents 11/25/03
Maine-ly Women
Wordsmiths, March 2003 Vol. 2 Issue 6
Reviewed by Noreen O'Brien
While I want to say that
An Autumn Called Evan, by Deborah Klane is a heartbreaking story,
I cannot. Klane
does such a beautiful job of showing us the human side of her severely
ill child Evan, the ultimately, what I see is a family consumed
in love, inspired and fostered by a beautiful boy.
Klane tells the story of
Evan through recollections begun at about the time of Evan's tenth
birthday—a
miracle birthday if ever there was one. She records their life
in and out of hospitals, doctor's offices, life-threatening emergencies,
treatments, home healthcare, school, all from the moment of Evan's
birth. We
learn what it is like to be the parent of an exceptional child, as much as
we learn what life is like for the child.
To help illustrate the life of this
family, their experiences, and emotions, Klane
has included poems
and drawings she created over the years, which have been sprinkled
throughout the book, as well as family photographs. All of these
are a touching reminder that this family is real and that the issues
they face every day are huge.
Too, this is as much a how-to
book as it is the story of one family. There are chapters included
on being
an effective team player, taking care of yourself as a parent,
learning to trust your own instincts, and how to stand up for yourself
and your child when you in disagreement with the professionals.
A glossary is
included, as well as a medical timeline, which is
a bit of a capsulation of the
events Evan experienced during each
year of his life to date. All unfathomable to this reader.
Klane recommends that medical professionals
be given training on how to deal effectively with parents of exceptional
children, and to include ongoing training
in this field. One can
only imagine what this family experienced and that was not recorded
in this book. The ignorance on the part of some of these "professionals"
is
quite astonishing. To me, even once being made to feel as though
Evan was something less than human was too many times, yet, Evan
and his parents and brother face into this regularly, including
from within the world of "healthcare," which is becoming
more an oxymoron every day in my own limited experience in that
area.
I marvel at the ferocity of protecting
her child's rights and humanity Klane brings
to her mission as mother to Evan. While this book is very much a book about
Evan, I think it is also a testimony to Evan's parents, and his mother, Deborah
Klane, in particular. I was moved to tears on more than one experience shared
in these pages, and made to feel angry and frustrated at how poorly we treat
those who are different from us, including children.
When all is said and done,
however, the most powerful moment in the reading of this book came
toward
the end. Klane had decided to have Evan speak for himself rather
than guess at his answers to her wonderings. Among other question,
she
asked
Evan if he was frustrated with the life he has been given having
done
nothing to deserve this lot since he hadn't chosen it. Evan
quickly signed no as his response to this question, which stunned
his mother. Further questioning convinced Klane that Evan chose
this life and, moreover, that God asked him to take this "assignment."
Stunning child—stunning
family.
Poignant memoir of Evan's struggle,
by Bill Busnell Central Maine Newspapers
As the mother of an exceptional
child, Deborah Klane has learned a few hard lessons about life.
Her son Evan, suffers from acute
cerebral palsy and sever epilepsy, and he requires constant care
and attention.
An Autumn Called Evan is Klane's
poignant memoir of Evan's life and how his struggle has influenced
herself, her husband, and Evan's
little brother. Klane and her family live in Fairfield and this
is her first book.
This is a first-person story,
as Klane candidly tells of the challenges of caring for such an
exceptional child. Evan is almost 12 years
old now, and Klane relates the full range of emotions and challenges
from birth to stunning discovery of his medical problems, and
through the years of coping, learning, and cherishing the life of
an ailing
little boy.
Through all of Evan's bouts
with pneumonia, the operation, infections, and eye problems, Klane
and her husband have endured incredible
stress, uncertainly, and frustration. However, they have also
enjoyed the love of a little boy, and
they have gained a much better
understanding
of human nature, especially their own family relationships.
This would be merely a sad
story if not for Klane's upbeat approach, unvarnished honesty, and
positive attitude. She turns this into
an inspirational story of hope, faith, and appreciation for life
itself, even when faced with Evan's uncertain future and a child's
mortality. Her chapters on her husband and her youngest son are
particularly revealing.
Klane has no illusions about
Evan's future. saying, "I think
of Evan as a little boy, sage beyond his years; someone who has
been given the gift of knowing of what
his purpose, his his job
is while on Earth; someone who has met the challenges of his job
with grace, strength, and a style all his own."
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