Since Evan’s birth in
1990, I had been right on screech, juggling work responsibilities,
keeping home-based chaos in check, providing and managing Evan’s
one-on-one 24/7 care, and parenting another non- disabled child with
a husband who’s work often took him away from home for days
at a time.
In May 1997, I left my full
time job at a local college to become a full-time at-home mom. When
Evan returned to school that fall, I found myself in elementary school
again whenever Evan didn’t have a nurse. I loved it! But because
Evan had a one-on-one education technician working with him in
the classroom, my role was more of a medical backup then an active participant. To keep myself
and awake while trying, sometimes unsuccessfully, to perch on those little
chairs designed for 6, 7, and/or 8 year old bottoms, I started writing.
Essays, poetry, reflections– all about Evan and our experiences
until that point, I hadn’t been able to dig too deep
or to look objectively at what Evan and I had been through up to this
point in our life together. What a wonderful, cathartic experience it
was! I had a collection of essays, poems, and original art work suitable
for print by the time I was done.
When I brought my collection
to Seven Coin Press publishers in 2000, my now
publisher favorably reviewed what I had, but she was left wanting something
more – more of the story. So, I took my manuscript back home and
created an outline of potential chapters based on what I’d already
written, and 18 months later is the book you see here.