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HISTORY OF THE BOOK

Since Evan’s birth in 1990, I had been right on screech, juggling work responsibilities, keeping home-based chaos in check, providing and managing Evan’s one-on-one 24/7 care, and parenting another non- disabled child with a husband who’s work often took him away from home for days at a time.

In May 1997, I left my full time job at a local college to become a full-time at-home mom. When Evan returned to school that fall, I found myself in elementary school again whenever Evan didn’t have a nurse. I loved it! But because Evan had a one-on-one education technician working with him in the classroom, my role was more of a medical backup then an active participant. To keep myself
occupied and awake while trying, sometimes unsuccessfully, to perch on those little chairs designed for 6, 7, and/or 8 year old bottoms, I started writing.
Essays, poetry, reflections– all about Evan and our experiences together. Up
until that point, I hadn’t been able to dig too deep or to look objectively at what Evan and I had been through up to this point in our life together. What a wonderful, cathartic experience it was! I had a collection of essays, poems, and original art work suitable for print by the time I was done.

When I brought my collection to Seven Coin Press publishers in 2000, my now
publisher favorably reviewed what I had, but she was left wanting something
more – more of the story. So, I took my manuscript back home and created an outline of potential chapters based on what I’d already written, and 18 months later is the book you see here.